Wednesday, July 08, 2009

Honesty

I'm going to be honest - an addiction to Facebook has taken me away from the blog. Also, a life that has left me with very little spare time (other than Facebooking) has had something to do with my lag in blogs. Now that we are happily (and finally) settled into our new home, I hope to blog more.

The blog was created to chart our journey of living with diabetes. I haven't blogged much about diabetes lately. After almost 4 years it has become our life. We try to manage it as best we can. We try not to think about how hard it really is.

While in Washington, DC a few weeks ago, a JDRF staff member told us to be honest about the disease when talking to our congressmen. Tell it like it is and don't be brave. I think we all have a tendency to put on a brave face when telling people about what it is like to live with diabetes. Lately, the reality of it all has been on my mind way too much.

Leah will be turning 2 next week. Chase was diagnosed 3 days after his 2nd birthday. Nothing, and I mean nothing, prepares you for your child to be diagnosed with an incurable disease. A disease, that left unmanaged, will set him up for a life time of complications, and yes, always the threat of death.

There is no break from this disease. It is the elephant in the room. It is always there physically and emotionally. When I look at my nearly 2 year old, it is there. When I look at a photo "pre-diabetes", it is there. When I hear a certain song on the radio, it is there.



The dream I'm dreaming is a cure for diabetes. Until then, all we can do is keep moving, keep climbing, and keep the faith. Oh, and be a little more honest.